Carrie Gillispie
Project Director, Early Development & Disability
Reflecting on disability history and looking forward to the American dream.
Editorial note: In this piece, the author uses antiquated, outdated language when necessary for legal and historical accuracy.
The American dream is the that if any American works hard enough, they can prosper and succeed. The nation celebrates the origins of the American dream this week as we mark the of the signing of the Declaration of Independence, which declared that 鈥渁ll men are created equal . . . with certain inalienable Rights [including] Life, Liberty and the pursuit of Happiness.鈥 Though concepts of the American dream have , certain pillars of success are constants: economic stability, a well-paying job, a thriving family, a good education, a house, food on the table, reliable transportation, and good health. But the one in four Americans with disabilities have always faced systemic, environmental, attitudinal, and policy barriers to achieving these pillars of success and, in turn, the classic American dream. Life, liberty, and the pursuit of happiness are not fully accessible to disabled Americans not because of their disabilities, but because of systemic and social roadblocks to these rights.
The history of disability in the United States is a 250-year crawl from confinement to community. For the first century of the nation鈥檚 existence, the prevailing narrative was one of “charity” or 鈥渟omething to be fixed,鈥 where disabled people were often hidden away in state-run institutions or subjected to laws that criminalized their presence in public. The timeline of the American disability movement is not only a list from a gruesome and terrible past; it is a record of a persistent and increasingly organized demand for independence, self-determination, and the opportunity to thrive. Below is a timeline of some (but far from all) of the key moments in U.S. history that signaled shifts in the American conceptualization of disability. From the early establishment of specialized schools to the activism of the twentieth century, this timeline tracks the shift from medical pity and criminalization to protected civil rights.
Sources: , , ,
The very definition of who was allowed to be a U.S. citizen was shaped by the exclusion of disabled people from the nation鈥檚 start. Americans with disabilities have refused to stay hidden and have attained increasingly meaningful access to life, liberty, and the pursuit of happiness. The transition from the 1990 signing of the ADA to the emergence of the Disability Justice framework in 2005 marks a profound shift in U.S. disability history. While the late twentieth century focused on access (e.g., ramps, braille, and legal protections), the twenty-first century has broadened the scope to address the intersection of disability with race, gender, economic status, and all identities of a person. We have moved beyond the simple right to enter a building and are now asserting the right to live fully integrated lives, free from the echoes of eugenics and institutionalization.聽
The American dream is still far out of reach for too many Americans with disabilities. In order to achieve the financial milestones of the middle-class American dream, according to one study, a person a college degree and at least five million dollars to spend during their lifetime. This is daunting and unattainable by most, even without the systemic, complex barriers to entry for those with disabilities in housing, transportation, health care, education, workforce and employment, and community living. For example, economic self-sufficiency, a key goal of the ADA, is stifled by and inaccessible educational and employment opportunities.
Recent federal actions, including harmful policy changes in education, health care, and threaten the foundations of the American dream for people with disabilities, and could roll back decades of progress. To move forward, it helps to consider the tremendous progress disabled Americans have made over the past 250 years and to remember Judy Heumann鈥檚 : 鈥淐hange never happens at the pace we think it should. It happens over years of people joining together, strategizing, sharing, and pulling all the levers they possibly can. Gradually, excruciatingly slowly, things start to happen, and then suddenly, seemingly out of the blue, something will tip.鈥